Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debiliating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story has touched the hearts of millions. This edition contains previously unpublished photographs and a new postscript revealing how the Deford family came to terms with the loss of a child and siste. All royalties from the book go to the Cystic Fibrosis Foundation.